L( HIV )IVING LOUD

L( HIV )IVING LOUD

Today is June 5th, HIV LONG TERM SURVIVORS awareness day, and I want to share this small documentary/video that my amazing young Italian journalism student from San Jose State University, Alessio Cavalca, did with a lot of love.

Special THANKS to Bill Hirsh, and ALRP, for all they do for our community, so they are part of this video.

Alessio and I connected a few months ago, and he shared with me the fact that one of his cousins died of AIDS in the 80s, and his family was very close to him when that happened. He wanted to bring a little bit of hope to the newly diagnosed and also to the HIV LONG TERM SURVIVORS.

This is also for my part, a focus on how much we need more intergenerational communication.

I’m incredibly thankful to Alessio, as I am to Bill and ALRP, but I want to also send love to all the HIV-LONG TERM SURVIVORS today, who many feel invisible and not acknowledged.

We are part of the first generations growing older with HIV, and all we want is to grow older with dignity.

I am myself a 37 years HIV LONG TERM SURVIVOR, living with chronic pain, but somehow, I think I am lucky to be LIVING LOUD.

#hivlongtermsurvivors #aging #survivors #l(hiv)vingloud #together #mentalhealth #HIV #AIDS #intergenerational #ALRP #HOPE

HIV LONG TERM SURVIVORS AWARENESS DAY- FABULOUS EVENT

Hello family! Please share this information with clients and friends

HIV LONG TERM SURVIVORS AWARENESS DAY

I AM SUPER ExCITEd ABOUT THIS INTeRNaTIONAL EVENT!!!!

I really hope you can join us, and let’s make this event the largest gathering of HIV LONG TERM SURVIVORS EVER!!!! .

Huge thanks to VIC PERRI and AUSTRALIA.

Zooming Across The Pacific!

(AEST) 10am-12noon, Sunday 5th June

(PT) 5pm-7pm, Saturday 4th June

#hivlongtermsurvivors#HIV#together#survivors

FREE event, but please register at the link here below.

For all people with HIV of all ages who identify as Long-Term Survivors. What is the most recognized definition of a long-term survivor? It is considered to be those who were diagnosed prior to the watershed year of 1996. This is when those who were newly diagnosed had the opportunity to commence HIV antiretroviral combination therapy and feel a sense of hope.

Join the Taking Charge Peer Support Network of Living Positive Victoria and Thorne Harbour Health as we have a discussion with the HIV Long Term Survivors International Networking group. Based in San Francisco, this group is a grassroots movement that began in 2015 and has almost 5,000 members. We’ll share stories and personal insights as we mark HIV Long-Term Survivors Awareness Day. We’ll have the opportunity to explore both the commonalities and the differences between the Australian and American epidemics.

Register Now! Zooming across the Pacific

What is HIV Long-Term Survivors Awareness Day?

The selection of June 5 for this annual observance coincides with the anniversary of the first official reporting of what became known as the AIDS epidemic on June 5, 1981. When the CDC first reported on five cases of a mysterious disease affecting young gay men. June 5, 1981, is considered the start of the AIDS pandemic.

Don’t forget to check out our ‘Well beyond 50’ website. It has some great feature stories as well as plenty of useful information. WELL BEYOND 50

Taking Charge is a partnership between Living Positive Victoria and Thorne Harbour Health.

For more information contact Vic or Gerry or message Jesus, admin of the HIV Long Term Survivors international network

MY PTSD

AH! PTSD. I think many times in my life, I didn’t grieve my own living with dying, my own getting sick. many of us just had to keep going, simply live. I was a new immigrant in this country, and I was just learning to speak English, and I had to work if I wanted to eat. So, yes, I learned I was HIV positive, but….I couldn’t stop my life to cry and experiencing mourning. Right now, I was watching a TV program, WHY WOMEN KILL, and there is a moment they mentioned this lesion in the skin, and this guy covering it with makeup, and…..I was back there when I was told about my status, when I experienced KS, when I run out of a doctor’s office when I was simply learning English, working in Jack in the Box, and pursuing my dreams. While, at the same time, I knew I could die tomorrow. I started crying a few moments ago, and I know somehow I’m here, and I’m thankful, but I also live with chronic pain, so the reminder never goes away. Our lives! Please keep telling your stories, keep speaking up, and keep sharing, because we understand each other, I know that. If anyone would like to share their story in zoom for this group, please contact me. We need to keep doing it. Thanks to all of you for being there, for supporting me and each other, in so many ways. #HIV #hivlongtermsurvivors #AIDS #aging #survivors

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NURSES ON THE INSIDE

Friday at 3 PM Pacific time

Stories of the HIV/AIDS pandemic

Jesus Guillen is inviting you to a scheduled Zoom meeting.

Topic: Nurses on the INSIDE- Stories of the HIV/AIDS epidemic

Ellen Marzer and Valery HUghes
Time: Apr 15, 2022 03:00 PM Pacific Time (US and Canada)

Join Zoom Meeting
https://us02web.zoom.us/j/2541767768?pwd=UFJldnBWdUVRN1F5THVXbXFBK1JTQT09

Meeting ID: 254 176 7768
Passcode: Xk8Q4s
One tap mobile
+16699009128,,2541767768#,,,,232544# US (San Jose) +12532158782,,2541767768#,,,,232544# US (Tacoma)

Dial by your location
+1 669 900 9128 US (San Jose)
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)
+1 312 626 6799 US (Chicago)
+1 646 558 8656 US (New York)
+1 301 715 8592 US (Washington DC)
Meeting ID: 254 176 7768
Passcode: 232544
Find your local number: https://us02web.zoom.us/u/kCnSFUZgN

USCHA scholarships

Hola Familia!!!!!
APPLY FOR A SCHOLARSHIP TODAY!
Deadline: Friday, June 3, 2022
NMAC offers several scholarship opportunities to support attendance. In addition to our general scholarships, we have several programmatic scholarships for youth, people living with HIV age 50 and older, long-term survivors, and social media fellows. Below is a description of each scholarship category.
https://uscha.life/scholarships/

hivlongtermsurvivors #aging #HIV #AIDS #PUERTORICO #survivors #juntos/as/es

Invitation from PLUS MAGAZINE

FAMILY!!!!

We have a great invitation from PLUS MAGAZINE and our friend Desiree Guerrero, I hope we count on you:

Hola my friend,

Thank you again for your time and patience! I so enjoyed talking to you yesterday, it’s been too long! Anyhoo, I had an idea for a story about your LTS group…I was thinking maybe a few members might be able to answer some questions about their own personal journey living with HIV and how the group has helped them. This can be totally anonymous if they choose. I have created a quick questionnaire below for folks who want to participate. They just need to email their responses to me at desiree.guerrero@pridemedia.com. XOXO,Desi

LONGTERM SURVIVOR QUESTIONNARE FOR PLUS MAGAZINE:

Answers can be as brief or lengthy as you’d like, and feel free to skip any!

Please choose how you’d like to be addressed if published:

First & last name: First name only: Anonymous: What are your preferred pronouns (he, she, they, etc): What is your age: What do you do with most of your time? (work, go to school, care for family, volunteer, retired, etc) When did you first discover you were living with HIV? What was that experience like for you? What has your journey since that time been like? Have you found sufficient support and ways of coping? What do you feel are the biggest challenges facing long-term survivors today? What do you do for fun and stress-relief?

OPTIONAL: If you do want to share your story publicly, you may also attach a photo of yourself. Please send image files straight from the source (your phone or camera) and not images downloaded online. This ensures the pictures are high enough quality for print purposes. Please email responses to desiree.guerrero@pridemedia.com

LONELINESS

WHAT DOES LONELINESS FEEL LIKE?

( No worries, I’m OK, but I do feel lonely many times, even if I have a life, and I keep busy, and yes, I have you )

Tell me about your own experience, I would love to hear from you. Let’s bring mental health out of the closet.

For me, loneliness feels like suddenly I have a mountain of sand over my body, and it’s heavy and does not let me breathe well, and somehow the sand gets inside my body, and each grain of sand is like a little knife and it hurts, going deeper and deeper, and I can not move.

And my tears come out slowly, almost like slow motion, and I feel like screaming, but I can’t. I’m in bed, facing the ceiling, and somehow I feel like a prisoner.SMILING, but EXPRESSIVE ME.

Jesus Guillen, a 37 years HIV LONG TERM SURVIVOR.

#lonelinesschallenge #loneliness #hivlongtermsurvivors #anxiety #mentalhealth #latinos #immigrants #aging #IAMHOPE

Senior Loneliness Epidemic

THE CHAT

THE CHAT

First “NEW YEAR INTERHEALTH and WELL BEING GATHERING OF FRIENDS

“WHAAAAAT? WHAT IS THIS? LOL, just a group of good friends who are advocates and survivors with a variety of health issues.

Please join us on January2nd, 2022 – 7pm EST, 6pm CST, 5pm AZ time, 4pm PST, at our first “NEW YEAR INTERHEALTH and WELL BEING GATHERING OF FRIENDS”

We’ll have, in this heart-to-heart conversation, a group of amazing advocates and human beings: Ross McCreery, Barby Ingle, Ken Taylor, Tiffany Kairos, Cathy Chester, Mary Patricia Pettigrew, Haley Quinn, and this crazy Latino, Jesus Heberto Guillen Solis.

Don’t miss this chat, tell your friends, clients, and social media followers, about joining us in this conversation that will be fun, informative, and full of healing energy.

#THECHAT

THE CHAT First “NEW YEAR INTERHEALTH and WELL BEING GATHERING OF FRIENDS”

Time: Jan 2, 2022, 04:00 PM Pacific Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/89148093444

Meeting ID: 891 4809 3444One tap mobile+16699009128,,89148093444# US (San Jose)+12532158782,,89148093444# US (Tacoma)Dial by your location +1 669 900 9128 US (San Jose) +1 253 215 8782 US (Tacoma) +1 346 248 7799 US (Houston) +1 301 715 8592 US (Washington DC) +1 312 626 6799 US (Chicago) +1 646 558 8656 US (New York)Meeting ID: 891 4809 3444Find your local number: https://us02web.zoom.us/u/kdLI8frFMg

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